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179 Developing a regional networked approach to care in integrated care boards for myasthenia gravis (MG)

jnnp · 2025-11-26 · canonical JSON source

6 visible annotations · policy: published · automated confidence ≥ 75.00%

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Background Current care pathway for myasthenia gravis has a number of inefficiencies and delegated budgets through Integrated Care Boards (ICB’s) budgets provide us an opportunities to address these gaps. Currently MG care is delivered via regional specialist centres but this is inequitable and does not provide patient care closer to home.Methods We brought together multi-disciplinary MG care teams across ICB areas that utilise the Sheffield and Birmingham regional MG services as exemplars to map current care delivery. This was carried out in 3 steps: development of an integrated care pathway for MG, systematically identifying the network of care, connect with commissioners in the ICB’s to plan how multi ICB MG services will be delivered.Results Reduce unwarranted variation in care delivery and improve multiple aspects of patient outcomes in MG. This model is transferable and acts as an illustration for other regions to follow. An illustration of how the mapping was developed and a case study to show the value of establishing the MG network will be illustrated.Conclusions An integrated MG network can be the basis to improve diagnosis and care for people with MG and is a transferable model of care other regional services could adopt.chewamadduma1@sheffield.ac.uk