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Kim Hearne is the CEO and founder of FND Action, and an advocate for those living with Functional Neurological Disorder (FND). As someone personally affected by FND, she brings a unique perspective, using her own experience to drive awareness, support, and change for the community. Through FND Action, Kim works to amplify patient voices, challenge stigma, and improve access to care. Her passion and dedication make her a powerful advocate for those navigating life with FND.Functional Neurological Disorder (FND) is a common but widely misunderstood condition, often leaving those affected feeling unheard, misdiagnosed, and unsupported. Despite being one of the most frequent reasons for referral to neurology, FND patients face significant barriers in accessing appropriate care, battling stigma, and securing recognition for their condition.This presentation will shed light on the lived experiences of individuals with FND, highlighting the challenges they face in the medical system and beyond. Many struggle for years to receive a diagnosis, only to find that treatment pathways are unclear, inconsistent, or even unavailable. The historical stigma surrounding FND – often dismissed as psychological or ‘not real’ – continues to impact the way patients are treated by medical professionals, employers, and even friends and family. This lack of understanding can lead to frustration, isolation, and worsening health outcomes.By centring patient voices, this presentation will explore the real-world impact of FND, from the emotional toll of feeling disbelieved to the practical difficulties of managing symptoms in daily life. It will also highlight the power of advocacy, peer support, and education in shifting perceptions and improving the future of FND care.Patients are the experts in their own experiences, and their voices must be heard to bring about meaningful change. By amplifying their experiences, we must all challenge misconceptions, promote better healthcare practices, and work toward a future where those with FND are respected, supported, and given the care they deserve.