Document resource
This presentation aims to provide a personal lived experience of the practical implications of completing an advance care directive.In 2019 I was diagnosed with a degenerative and incurable genetic muscle disease, along with three of my closest loved ones. After spending some time coming to terms with this life-changing circumstance, the pragmatic part of my personality stepped in and started researching how best to move forward. As a clinical mental health social worker, I have supported many clients through different yet similar situations. Consequently, I am aware of things that could potentially be helpful for me and my family, including undertaking advance care planning.There are multiple aspects related to having a current advance care plan, including the peace of mind it affords me on a journey that is not straightforward. For example, in 2023 I had a minor day procedure that resulted in my staying in intensive care for a while. This was not planned or expected. However, having an advance care plan meant that my recorded wishes could be met (or at least considered!). Also, and equally as important, another layer of stress was removed for my husband, who would have been faced with making decisions and worrying about whether they were right or not. The role of caregiver is not an easy one and aiding in this role for us is extremely valuable.The unique contribution of a lived experience enables practitioners to gain insight into valuable, hands-on, and relevant knowledge. Learning from those who have practical experience assists in supporting others facing similar circumstances. Every situation and person will be different, yet having a starting point will contribute to each practitioner’s practice framework and enable them to develop from a sound epistemological perspective.The implications of having an advance care plan include reducing the need to make decisions during times of stress, which is especially important for those of us who have memory disorders. Additionally, an advance care plan enables loved ones or substitute decision-makers to provide supports that align with the recipient’s wishes accurately.